Transforming Cancer Survivorship Through Research and Best Practice

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I’m already jotting down questions for the panel of this March 2015 symposium, and looking forward to participating as an observer.

Produced by the University of Cincinnati Cancer Institute Survivorship Program, the event features as speakers the All Stars of Cancer Survivorship: Julia H. Rowland, PhD, Director, NCI Office of Cancer Survivorship; Patricia Ganz, MD – UCLA; Michael Stubblefield, MD – Memorial Sloan Kettering Cancer Center; Kathryn Schmitz, PhD – University of Pennsylvania; Wendy Demark-Wahnefried, PhD, RD – University of Alabama; and, Timothy Ahles, PhD – Memorial Sloan Kettering Cancer Center.
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Fashion Designers Tommy Hilfiger and Dee Ocleppo Hilfiger To Honor 2014 CancerForward Forward Movers at Saks Fifth Avenue Key To The Cure Kickoff

 
Kristy & Chris Bradshaw 2014 Kickoff ChairsSaks Fifth Avenue and PaperCity Magazine will present Houston’s 16th Annual Saks Fifth Avenue Key To The Cure Kickoff from 6:30 until 8:30, Wednesday, October 15, 2014 at Saks Fifth Avenue, Houston Galleria. Chaired by Kristy and Chris Bradshaw, the event is one of the fall season’s most anticipated social happenings, and will benefit CancerForward: The Foundation For Cancer Survivors for the fifth consecutive year. Tickets are $50 per person in advance or $100 per person the night of the event.
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Meditation To Help Cancer Survivors Achieve Mind-Body Wellness

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Founded in ancient religious and spiritual traditions, mediation is growing in practical acceptance to promote physical relaxation, guide spirituality, and improve our mind-body wellness. Some underestimate the possible health benefits that can be achieved by finding a quiet location, getting into a comfortable posture, and focusing our attention and attitude toward something positive. But, many health care professionals recommend meditation as a treatment option for chronic pain, stress, anxiety, insomnia, depression, as well as symptoms of major chronic illness like heart disease, cancer, and diabetes. For over ten years, it’s measurably improved my experience as a healthy cancer survivor. That, thanks to my mindfulness and meditation mentor, Micki Fine, MEd, LPC.
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Radical Remissions: Cancer Survivors Who Defy the Odds

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Editor’s Note: Roxanne Nelson is a freelance journalist for Medscape Oncology. This blog post first appeared July 8, 2014 Medscape Oncology which owns the copyright to the post.

By Roxanne Nelson

According to statistics, Lola Baltzell should have died 3 years ago. Instead, she celebrated the fifth anniversary of her diagnosis of metastatic breast cancer by biking 110 miles to raise money for the Dana-Farber Cancer Institute in the Pan-Mass Challenge.
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A New and Expanded Governing Board For CancerForward

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CancerForward grew today from an inaugural governing board to a larger and more diverse board…an exciting move long time in planning. Both the old board and the new board are dream boards, and I couldn’t be more appreciative for the service of each member.

Nothing will more positively impact the success of CancerForward than its board of directors. A great nonprofit board is essential to the legality of our enterprise, how much money we will raise, and how well we do in executing our mission. Finding directors who will exercise the best mix of responsible oversight and appropriate level of control means locating and recruiting people with the best skills, as well as the wisdom, honesty, and spirit of public service to guide your organization through the good times and the bad. We are fortunate to have been able to do that.
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Journaling: A Starter Kit for Patients, Survivors and Caregivers

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By David Tabatsky

Whether you call it expressive writing, journaling or keeping a diary, writing about one’s deepest thoughts and feelings can be a therapeutic tool for those struggling with cancer. A research study in The Oncologist medical journal found that patients who participated in a single 20-minute writing session improved their outlook on cancer and may contribute to improved physical and emotional health by easing stress and trauma. Considering these proven advantages, it seems like a good idea to explore the value of journaling as well as the beneficial tools writing offers for improving communication between the parties involved––patients, survivors, family, friends caregivers and medical staff–– all coping with the challenges of cancer.
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CancerForward Survivor Stories: Everyone Has a Wonderful Story, But How To Tell It?

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Editor’s Note: Lisa Gualtieri, PhD, ScM, is Assistant Professor at Tufts University School of Medicine in the Department of Public Health and Community Medicine. She teaches Online Consumer Health, Social Media and Health, Mobile Health Design (online), and Digital Strategies for Health Communication. This post first appeared on February 19, 2014 on her blog on health, and has been re-published on CancerForward.

By Lisa Gualtieri, PhD, ScM @lisagualtieri

Many health-information websites include stories, but some have richer sets of well-written stories than others. CancerForward is one of them. After reading the stories on CancerForward™, I spoke to Beth Sanders Moore, the founder of CancerForward, to ask her why the Foundation includes stories on its digital platform and how they solicit them.
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I Never Wanted To Be a Cancer Expert, But Then My Wife Got Sick. A Caregiver’s Tale.

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Editor’s Note: Saul Schwartz is a labor and employment attorney who lives in Maryland. This blog post first appeared February 17, 2014 in The Washington Post which owns the copyright to the post.

By Saul Schwartz

It was my wife’s first colonoscopy; it turned out to be the only one she ever had. She was 53. Whether Cheryl would have lived longer if she’d had the exam earlier I’ll never know. She died in the fall of 2013, in her sixth season with cancer.

Cheryl had exhibited no symptoms prior to the test. Absent a family history of colon cancer, the standard protocol is to have the test after turning 50. Needless to say, we were shocked when the doctor showed us the scans indicating that the test was positive for cancer.
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We Need More Writing About Cancer, Not Less

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Editor’s Note: James Poniewozik writes TIME magazine’s Tuned In column, about pop culture and society. This blog has been re-published on CancerForward and first appeared on January 14, 2014 on TIME’s blog Tuned In @TIMECulture.

By James Poniewozik @poniewozik

Amid the shouting over Emma and Bill Keller’s weird journalistic tag-teaming of Stage 4 cancer patient and advocate Lisa Bonchek Adams – you can read Margaret Sullivan’s capable summary here – I’m going to take what’s probably the best first step in situations like this and admit what I don’t know. I’m not a doctor. I’m not a public health expert. I’m not deeply familiar with Lisa Adams’ personal situation. I don’t have a loved one with cancer, and I don’t have cancer myself. Yet.
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Better Equipping Primary Care Physicians to Care for Cancer Survivors

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There’s encouraging news out today that Americans’ risk of dying of cancer has declined 20 percent over the past two decades. The drop in cancer deaths has translated into a growing population of survivors of the disease, particularly in children. But there’s more data recently published. It questions whether primary care doctors are prepared to provide survivorship care for young survivors once they’ve reached adulthood.

Published today in the Annals of Internal Medicine is this article: “General Internists’ Preferences and Knowledge About the Care of Adult Survivors of Childhood Cancer: A Cross-sectional Survey. “ In the study (subscription required), researchers surveyed more than 1,100 general internists and inquired about their knowledge of the special medical needs, such as increased screening, of these patients.
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